We are very excited to share that our effort in reaching more in the medical community was impacted by the recent publication in the Journal of American Academy of Pediatrics. Our manuscript titled When Bad News Isn't Necessarily Bad: Recognizing Provider Bias When Sharing Unexpected News was a collaborative effort from Jack's Basket Board member Dr. Michael Pitt, Dr. Naomi Goloff, Dr. Christopher Carroll, and myself, founder and executive director...also known as Jack's mom.
We are beyond thrilled to have this opportunity to reach the largest national organization of pediatricians. Our purpose is to shine a light on an important lesson for providers: that often we bring our own biases to the table when we frame news as “bad” when ultimately, from a family’s perspective, it may not be bad at all. In doing so, recognizing the integral role in how providers start a family’s journey with a new diagnosis. Using our family’s story as a framework, we aim to help providers consider when an alternative paradigm may be valuable, with a shift from “breaking bad news” toward “sharing unexpected news,” and we provide tangible skills to consider when this approach may be ideal.
Click the link to read more and view the video abstract that is sure to impact many future families. If you are interested in the Jack's Basket medical outreach team presenting to your staff/group or provider, please contact us at firstname.lastname@example.org
Thank you for helping us bridge the gap between families that are loving their lives with a child with Down syndrome and providers giving an unexpected diagnosis to their patients.